Crohn’s and Colitis Awareness Week begins today, marking an important initiative to shed light on the challenges faced by individuals living with Inflammatory Bowel Diseases (IBD), such as Crohn’s Disease and Ulcerative Colitis. These conditions can result in painful symptoms, including abdominal cramping, diarrhoea, and fatigue. According to Crohn’s and Colitis UK, many patients struggle daily with these debilitating issues.
A prominent social media influencer, known on TikTok as letstalkcrohns, recently shared five crucial insights he wished he had known before his diagnosis of Crohn’s Disease. He emphasized that understanding these points could have alleviated significant stress and confusion during his journey with this chronic illness.
Insights into Living with Crohn’s Disease
The influencer began by highlighting that flare-ups of Crohn’s Disease extend beyond just urgent bathroom visits or stomach pain. “I didn’t expect to have joint pain, fatigue, fever, or brain fog,” he explained, emphasizing that the condition affects the entire body, not just the digestive system. This broader perspective is vital for both patients and their families to understand the full impact of the disease.
He also addressed a common misconception regarding diet. “It’s not just about food,” he stated. “I used to think that just avoiding trigger foods would be enough, but stress, poor sleep, and over-exertion all play a massive part in your wellbeing.” This insight is particularly important as it highlights the multifaceted nature of managing Crohn’s Disease, which requires a holistic approach beyond dietary restrictions.
Regarding treatment, he noted that hospital visits may become frequent and that not all treatments will be effective on the first attempt. “It’s a process of trial and error, having patience, and finding a solution that works for you,” he advised. This emphasizes the need for resilience and adaptability in the face of ongoing health challenges.
Understanding Remission and Emotional Support
The influencer also spoke about the concept of remission, explaining that it does not equate to a complete absence of symptoms. “Remission doesn’t mean that you’re going to feel 100 percent better,” he cautioned. While patients may experience better days, Crohn’s remains a chronic condition that necessitates continuous management.
He concluded his video by reflecting on his journey, stating, “I wish I knew a lot of this sooner, but honestly, how are you supposed to know?” This sentiment resonates with many who navigate the complexities of chronic illnesses, underscoring the need for greater awareness and education.
In the comments section of his video, numerous TikTok users shared their experiences, illustrating the communal nature of living with these diseases. One user remarked, “Took me two years to find the right medication for Ulcerative Colitis. Been in a flare since last November and I’m only just starting to come out the other side.” Another noted the frustration of misconceptions surrounding the illness, stating, “People always tell me what diets to try like that’s how it works.”
Additionally, a different user emphasized the importance of prioritizing mental health. “It’s a lot harder to do that than the physical,” they wrote, adding that small victories are significant along the journey.
As Crohn’s and Colitis Awareness Week unfolds from December 1 to December 7, 2023, the insights shared by patients like letstalkcrohns serve as valuable reminders of the broader impacts of these conditions. The discussions prompted by this initiative aim to foster understanding and support for those affected by Crohn’s Disease and Ulcerative Colitis. For more information, visit crohnsandcolitis.org.uk.
